Infection Update

My appointment this morning with my plastic surgeon went well lots of with lots information. It turns out that I had a pretty nasty infection leading to last Sundays emergency surgery (I forget the name of the actual infection but she kept saying it was one of the bad ones and that it started at the drainage tube site. Her kind eyes confirmed she did everything she could, but there is no way she could have saved the tissue expander on that right side due to the severity of the infection. Sadly I had felt the pain in the drainage tube for a day or so, but thought it was normal and didn’t make the call. (if ever in this situation don’t make my mistake, MAKE THE CALL) Away, she was thankful I called when I did because I guess it would have gotten much worse and it could have moved further through my body.

Downside is that I’m still at kind of risk for this infection for a while. They cleaned it out good, but it was a bad one so she’s not taking any chances. More and new stronger antibiotics, and no new tissue expander or implant for 6 months, which of course makes me sad. She will plan to do a fatty tissue graft/implant to fill the hole as soon as we can, which will make it look a little better. However, if I have to have radiation then we will be waiting two months before that procedure. Again a bummer.

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Dr. Tammy Kreuzer

Dr. Tammy Kreuzer
This physician and more importantly this woman is nothing short of amazing. She performed my triple Biopsy a few short weeks ago to start this entire journey. Her gentle approach, her amazing bed-side manor and her ability to relate, put me at ease before we even got started. Let me start by saying that biopsy’s are not exactly pain free or fun in anyway, but she had me laughing and joking the entire time to take my mind off of what was actually happening. At the same time she was also very honest and open about what she was seeing which was so helpful to me. I’m assuming this experience for many is not a good one, however looking back, my hour with Dr. Kreuzer and my amazing nurse, who both seem way more like friends was a positive experience despite our malignant findings. If you have to get this type of news, these are the ladies you want to deliver it.

To get to the point, I came across this video of Dr. Kreuzer discussing one of the many ways they/she detects breast cancer in women of all ages. Although this discussion is not related to me and is not at all the type of procedure I had, I still feel it is a quick informational video that anyone with a lump, fear or family history may find helpful so I’m sharing it with all of you

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GoFundMe

We all know how fast things happen on facebook so I feel it’s necessary to address the GoFundMe account that my dear friend Sarah Keast selflessly set up for my family in the days following my diagnosis. I’m going to start by saying that this will be one of my hardest posts to date, although I’m sure I’ll top it in the coming days or weeks. I truly believe in these pages for the right reason/people and I am both honored and humbled by the fact that she did this for me. (Although I will admit I never thought there would ever see one with my name on it)

I have to be honest and admit that although I was grateful when I found out what my sweet Sarah had done for me, I also instantly felt awful because it is just “not me”…if that makes sense. I know this may seem odd considering how open I have been with all of you on here since my diagnosis, but I have always been a very shy, timid or almost guarded person so I kept my distance from the account for a bit to not only except that it is real and out there, but also to allow myself feel Sarah’s love and kindness as well as to open my heart to others love and kindness.

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Heart to Heart

My heart friend, my daily motivation, and one of my biggest inspiration’s sent me a book titled Journey to the Heart by Melody Beattie after my diagnosis. This book has been a huge force in her life for over 25 years and she felt I could use it the most right now. Boy was she right. It’s not a long read, but more daily thoughts or reflections to lift your heart, free your soul, and help you see the good around you or the bigger picture as I often call it.

Today’s message was titled “Heart Connections” which is so powerful for me considering Vicki and I have always referred to each other as “heart-friends”. Reading it made me realize how and why she came into my life like the positive and passionate force that she did those years ago and even more how it was all meant to be in part of this greater plan.

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Mommy’s Ouchies

When you’re faced with something as life-altering as breast cancer everyone you see seems to look at you with fear filled cancer eyes but the last thing I wanted to do was let my 2 see or feel that fear. At two years old your life is supposed to be filled with fun filled play dates but those days stopped on February 16th when I received my diagnosis. Our lives have been turned upside down, but so has our sweet girls. Instead of spending her days learning letters and playing with mommy she is now watching everyone care for her mommy.

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Officially Home… Again

So I’ll be honest today kinda stunk because I had planned on coming home pretty early to spend the day with my sister, Jordan, and Corryn and instead I was still admitted most of the evening for after surgery care. The good news was that my infection has improved greatly and I at least made it home tonight resting in my own comfy bed.

Screen-Shot-2015-11-18-at-9.25.52-PM_v2However to be truly helpful to others in my shoes, I’m going to talk about the less then fun aspects of after surgery care. For example, who knew that it is pretty common for anesthesia to put your bladder to sleep for several hours or even days after surgery making it impossible to urinate on your own? This happened for a day after my bilateral Mastectomy a few weeks back, but was much worse this time around. Let’s just say that 2 days of straight catheters administered by nurses in order to empty your bladder was NOT the highlight of my stay. But there’s also the supervised bathroom breaks, shower time and hand/belt held walks in the hall if you truly want to feel needy or incompetent.

 

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Emergency Surgery

The worst-case infection scenario became my reality today however it was far less then we feared surgery wise. As of 6:00 am I saw my plastic surgeon’s resident where he preceded to send images to my surgeon based on the progress made through IV antibiotic treatment and drain output. Within the hour my amazingly kind surgeon was at my bedside dressed in cute “day off” attire checking the results herself. After a bit of deliberation she decided that her fear was correct and my infection was coming from the inside and the tissue expander/spacer had to come out. Since she was a bit concerned and due to leave the state later this afternoon she jumped into action quickly and secured an OR within only a few hours.

It was a bit chaotic based on the fact that I was here alone with limited cell service however I got the message to close family and friends out and had one of my rocks Sarah Keast by my side in less then an hour. It was a bummer that I didn’t get to see my sweet and very worried hubby before the surgery, however we really want to keep Corryn away from the hospital setting so it was important he stayed with his other love. I did however finally get to greet my very sweet and teary-eyed sister Misty who flew in from Colorado late last night moments before they took me back.

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Drainage Tube Infection

I have had a bit of pain around my right drainage tube site for the past few days but figured that came with the territory. Well after letting my sister and husband look at it last night we realized that it looked pretty infected, swollen and raised in addition to some oozing. We also noticed that my right breast was also very swollen, red, and warm to the touch, which was a little concerning.

After cleaning it and talking to my new nurse sister/friend it felt better so I went off to bed with plans of calling my surgeon in the morning. My initial reasoning for calling was only because the precautionary antibiotic I was given was going to run out today and I wanted to make sure I had it for a few more days given the forming infection.

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Emergency Room

I spent the day in the ER with some chest pain that my surgeon feared was either heart related or a traveling bold clot from my surgery. Although we didn’t exactly get any answers after several tests we at least left knowing it was not a clot. They did find swollen nodule that could have been causing the pain in my chest, shoulder, and arm and is most likely the result of my surgery.

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Pathology Results and Staging

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Today was in a sense “D” day with my amazing Surgical Oncologist Dr. Marianne Melnik who performed my bilateral mastectomy just over 3 weeks ago (My first surgery). Before walking into the exam room I was greeted by hugs from both Dr. Melnik and her amazingly sweet and helpful nurse practitioner, Kim. With a camera in tow I began to explain that I had a photographer documenting my journey in photos and that I really wanted something bigger and more positive to come from all of the negative that seemed to be surrounding me. Although Sam was not able to be with us today, Jordan acted as a stand-in to capture the raw moments. Watching both of their faces light up as I talked of my plans filled my heart with warmth and joy and oddly distracted me from our meeting intentions.

I’ll be honest, over the past few weeks I have been preparing myself to hear that I would only require 5 years of hormone therapy and at the most 5 weeks of radiation treatment, however the Onco-type testing results from tissues taken at the time of surgery came back with higher levels then expected which means that my treatment course now requires Chemo, radiation, and hormone therapy. As Dr. Melnik gave me the news my heart sank and my body and mind instantly went numb. In a weird way having cancer without the need for Chemo almost felt like not exactly having cancer, or at least having a lesser form. Now that Chemo is in my future this cancer and this diagnosis seems so much more real and in a way it feels like I am now having to tell everyone the bad news for the very first time all over again.

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I will admit hearing the words Chemo hit me like a ton of bricks, yet I still haven’t broken down and cried. I’m not sure why that is really but I think keeping my game face on gives me the strength I need to get through this. I know going forward that the loss of my hair will be my hardest day. Right now I have the ability to put on a strong face and hide behind my healthy looking exterior however I am facing the reality that Chemo will without a doubt strip my healthy exterior and bring me down to my most vulnerable of forms. Not being able to hide what is happening to me is my greatest fear, but I’m doing all that I can to embrace the good in all this and stay as positive as possible. Even though each day seems to bring a little more negative news my way, I am also reminded of all of the wonderful people and more importantly I am reminded of the amazing doctors I have fighting in my corner. I’m so happy to have the medical team that I have surrounding me right now and just as grateful for all of the wonderful people that have come into or even come back into my life since this journey started.

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In talking with Dr. Melnik and a Chemo specialist I was comforted in the fact that cancer treatment in general has come a long way in recent years. There is no doubt that this year is not going to be a fun one for me, however I am being told that the side effects have greatly lessened, and I will not only be able to function, but that I will also be able to work throughout my entire treatment course which was huge for me.

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I’m not sure how, but even in the moments the news was delivered Jordan was able to spring into action and capture the rawness of today’s meeting in Sam’s place. Perhaps it was the perfect distraction for him or and he saw how special it was that I was at least among the kindest of medical professionals when given the news or maybe he himself found it comforting to hide behind the camera. Either way I am so thankful he got the shots he did

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Going forward I will admit I have fears but I am also VERY confident that my specialist’s extensive knowledge paired with the care I see in their eyes and the hope i feel in their hearts is going to give me my life back. I am sure that Spectrum Health has a ton of exceptional Oncology Physicians on staff but I can openly say that I hold Dr. Marianne Melnik, at the very top of my list.

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