The past few days have been pretty rough. All of the infection and hormone mediation that I have been on has made it hard for me to eat or drink much thus making me really shaky, weak and just over all crumby feeling. Yesterday I saw my surgical oncologist and my plastic surgeon among a few others and all were very worried that I was a tad too malnourished and dehydrated so I after talk of admitting me again they decided I could just do outpatient fluids with IV medication however right as I finished that part up and got ready to head home I started experiencing VERY severe pain in my left breast that was almost shooting through my chest. Read More
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Finally Home
I was released from Spectrum Blodgett Campus tonight, but was in a way released on red alert because my infection is not 100% out of my system. After surgery infections do not happen often, however they do happen and unfortunately I fell into that small statistic. Both my goal and my surgeon’s goal is to take care of this infection without having to remove my left breast tissue expander/spacer, so I left the hospital with two VERY strong antibiotics and a very determined mindset. It is my job to now become the “hypochondriac” that I have never wanted to be for the next 48 hours and call my surgeon if I notice or feel anything different before I see her in her office this Wednesday. The worst-case scenario would be for this infection to get worse and require the emergency removal of my expander so please keep your fingers crossed for me.
It’s good to be home and in my own bed, but I must again send a huge “thank you” to Dr Timek for making herself available to me on her weekend and to all of my doctors and nurses at Spectrum Blodgett for taking such amazing care of me over the past few days
Before Diagnosis: Personal Cause Related Design Work
Since I slept about 16 hours yesterday/today due to being medicated in the hospital, I am now awake and wanting to share. Although I have a growing list of topics I want to write and post both on here and on the blog that I have in the works, I thought I would first talk about another odd or “meant to be” moment that happened in the weeks leading up to my diagnosis.
While I was in Design School at Kendall College of Art and Design oh so many years ago, I fell love with many breast cancer organizations like the Susan G. Komen organization and the pink ribbon association, because of my personal connection in loosing my very inspirational aunt. However because of how young I was at the time, I was personally touched by the mission of an organization called Boarding for Breast Cancer that is geared to informing a much younger audience on not only the risks and possible precautions to take in preventing breast cancer, but also on how to be proactive in early detection as well. During that time, I designed a poster campaign that won me a handful of local/regional design awards and I did get in contact with B4BC as well. (A big thank you to my former snowboarder college roommate and friend Margret for showing me this site and getting me involved so many years ago)
Day 3 at Blodgett for Infection #2
They have been continuously pumping me full of very strong IV antibiotics. The good news is that my infection has not worsened; however it also not improved much, which is somewhat concerning. The plan as of now is that my surgeon will re-assess in the morning on whether or not I need surgery. So I’m here for at least another 24 hours. If it hasn’t gotten better by morning I will be having surgery tomorrow to remove the expander/ spacer. And if I get lucky and it has improved I will be released on high level alert to watch for any signs of redness and/or pain so I can get back here to have it removed. Fingers crossed it improves.
Above and Beyond
Everyone is going above and beyond to make me feel both and supported right now, but especially this wonderful brother in law of mine! He was already traveling from Atlanta to Indiana for work but he went a good 4+ hours out of this way to stop in and surprise little old me. My sis hit the jackpot with this one, but then he did as well. I love you Pauly.
Back in the Hospital for Infection Round Two….
Well my weekend plans have changed just a bit. Rather then spending the evening with our bestie’s tonight, spending the day at the spa tomorrow with a friend, and spending quality time with my hubby, I’m now planning a weekend escape at Casa Day Blodgett aka the hospital for another possible infection on the other side now. Fingers crossed it’s clear and I get to go home tomorrow.
In the words of a Friend
I cannot tell you how many messages, texts, and posts I have received in the past few days that have not only given me hope, but also given me more strength and determination to kick cancer’s butt. (In fact I have not even gotten through them all) However this message that I received from a dear friend of mine today hit home on a lot of levels and lifted me in a way I didn’t think possible.
Surrounded by Love
A former bridal client turned amazing friend sent this to my personal page and it just seemed fitting to share it on here as well. I still have not broken down and fully cried since the start of this journey, however hearing this song reminds me of the all the amazing people I have surrounding me right now and I will admit my eyes did well up. Jessica Thornton you truly are one my rocks. I cannot thank you enough for being such a great friend. Love you to pieces.
Gone Viral
After a pretty intense day, I received a phone call from a reporter at Fox 17 news who mentioned that a few people whom I do not know had contacted them saying that they felt what I was doing was inspiring others and it was worth sharing. I’ll be honest, I had literally just got home from my getting my “scary” news and after getting only an hour of sleep the night before, getting the news about my treatment and then talking to a few of my other doctors on the phone with updates from the day, all I really wanted to do was take a nap.
Genetic and Oncotype Results
Today was in a sense “D” day with my amazing Surgical Oncologist Dr. Marianne Melnik who performed my bilateral mastectomy just over 3 weeks ago (My first surgery). Before walking into the exam room I was greeted by hugs from both Dr. Melnik and her amazingly sweet and helpful nurse practitioner, Kim. With a camera in tow I began to explain that I had a photographer documenting my journey in photos and that I really wanted something bigger and more positive to come from all of the negative that seemed to be surrounding me. Although Sam was not able to be with us today, Jordan acted as a stand-in to capture the raw moments. Watching both of their faces light up as I talked of my plans filled my heart with warmth and joy and oddly distracted me from our meeting intentions.
I’ll be honest, over the past few weeks I have been preparing myself to hear that I would only require 5 years of hormone therapy in pill form and at the most 5 weeks of radiation treatment, however the Onco-type testing results from tissues taken at the time of surgery came back with higher levels then expected which means that my treatment course now requires chemo, radiation, and hormone therapy. As Dr. Melnik gave me the news my heart sank and my body and mind instantly went numb. In a weird way having cancer without the need for chemo almost felt like not exactly having cancer, or at least having a lesser form. Now that chemo is in my future this cancer and this diagnosis seems so much more real and in a way it feels like I am now having to tell everyone the bad news for the very first time all over again.